Privacy Policy

The purpose of this privacy policy https://www.gensight-biologics.com/ (hereinafter referred to as the “Privacy Policy“) is to detail the origin and use of personal data collected and processed by GenSight Biologics via the website available at the URL address https://www.gensight-biologics.com/, as well as the measures implemented to best protect said personal data.

Identity of the data controller

GenSight Biologics, a French limited company (société anonyme) with a Board of Directors and a capital of € 3 119 361,12, having its registered office at 74, rue du faubourg Saint-Antoine – 75012 Paris, registered with the Paris Trade and Companies Registry under number 751 164 757, represented by Ms. Laurence Rodriguez, in her capacity as Chief Executive Officer (hereinafter referred to as “GenSight Biologics“), publishes the website available at URL https://www.gensight-biologics.com/ (hereinafter referred to as the “Website“).

As part of the provision of the Website, GenSight Biologics collects and processes certain personal data of any person browsing, consulting and contacting GenSight Biologics on the Website (hereinafter referred to as “Users“).

Consequently, GenSight Biologics acts as data controller.

GenSight Biologics respects the right to privacy and recognizes the importance of protecting personal data.

In this respect, GenSight Biologics (and consequently, its employees, agents, partners and subcontractors) undertakes to process Users’ personal data in accordance with the provisions of Regulation 2016/679 on the protection of individuals with regard to the processing of personal data and on the free movement of such data (hereinafter referred to as the “RGPD“), Law no. 78-17 of January 6, 1978 relating to information technology, files and freedoms (hereinafter referred to as “Law no. 78-17“) as well as the stipulations of the Privacy Policy.

Categories of personal data

Personal data is information relating to a specific, identified or identifiable person. A person is identifiable when he or she can be identified, directly or indirectly, in particular by reference to an identifier, such as a name, an identification number, location data or an online identifier.

The personal data that GenSight Biologics collects and processes via the Website are:

  • Identification data (surname, first name(s), title, country of residence);
  • Data relating to professional life (company in which the data subject works);
  • Contact data (e-mail address);
  • Data relating to operations carried out via the Website (e.g. subject of the message sent, content of the message sent);
  • Connection data (e.g. technical logs, IP addresses).

Purposes of processing

GenSight Biologics processes Users’ personal data for the following purposes:

  • Compile a file of customers and prospects (the legal basis for this processing is the legitimate interests of GenSight Biologics);
  • Manage requests to exercise the rights listed below (the legal basis for this processing is a legal obligation to which GenSight Biologics is subject);
  • Respond to a contact request sent to GenSight Biologics via the contact form available on the Website (the legal basis for this processing is GenSight Biologics’ legitimate interest).

Data recipients

The data collected is strictly confidential and intended for use by GenSight Biologics.

However, some of the User’s personal data may be transmitted, in a secure and temporary manner, to third parties when this is necessary to enable it to meet the aforementioned purposes.

In this context, the categories of recipients likely to receive certain personal data are as follows:

  • Service providers with whom GenSight Biologics has contracted to operate and maintain the Website (e.g. Website host);
  • GenSight Biologics employees strictly authorized to answer Users’ questions;
  • Financial, judicial or administrative authorities on request and within the limits of what is authorized by the applicable legislation;
  • Certain regulated professionals such as chartered accountants, statutory auditors and lawyers.

GenSight Biologics ensures that all its partners who receive Users’ personal data place the protection of personal data at the heart of their mission, make contractual commitments regarding data protection at least equivalent to the Privacy Policy, and undertake to take all measures to ensure the security and confidentiality of personal data.

Users’ Rights

Users have :

  • A right of access: this allows the User to obtain information concerning the processing of his/her personal data as well as a copy of said data;
  • A right of rectification: this allows the User to request that any personal data he or she considers inaccurate or incomplete be amended accordingly;
  • A right to object: this allows the User to object to the processing of his/her personal data for reasons related to his/her particular situation;
  • A right of limitation: this allows the User to suspend the processing of his or her personal data while retaining the data processed;
  • A right to portability: this allows the User to have the personal data he has provided returned to him or, where technically possible, transferred to a third party. The information requested by the User will be supplied in electronic form, unless expressly requested otherwise;
  • A right of deletion: this enables the User to obtain the deletion of his/her personal data. The right to deletion of the User’s personal data is not applicable in cases where processing is carried out in order to comply with a legal obligation;
  • The right to withdraw consent: when the legal basis for processing personal data is consent, the User may withdraw consent at any time.

The User may exercise his rights by sending an e-mail to the Data Protection Officer at the following address: dpo@gensight-biologics.com.

GenSight Biologics has one (1) month from receipt of the User’s request to respond.

The User also has the right to lodge a complaint with the CNIL, 3, place de Fontenoy, TSA 80715, 75334 Paris Cedex 7 (https://www.cnil.fr) in the event of difficulty.

Data retention period

GenSight Biologics retains Users’ personal data for a period of three (3) years from the last contact with the User concerned.

However, at the end of the above-mentioned periods, certain data may be archived for longer periods (i) in the event of legal proceedings, in order to establish the reality of the facts in dispute; and/or (ii) for the purposes of investigating, establishing and prosecuting criminal offences, with the sole aim of making such data available to the judicial authorities, where necessary.

Archiving means that data can no longer be consulted online, but must be extracted and stored on an autonomous, secure medium.

Once the time limits set out in the Privacy Policy have elapsed, Users’ personal data will be deleted.

Storage and transfer of personal data outside the EU

GenSight Biologics endeavors to store personal data only in European Union member states subject to the RGPD and in any event only within “adequate” countries within the meaning of the RGPD.

In the event of a contract to the contrary, GenSight Biologics will put in place appropriate safeguards, in compliance with the GDPR.

Modification of the Privacy Policy

GenSight Biologics reserves the right to make any changes to the Privacy Policy at any time.

In the event of modification of the Privacy Policy, GenSight Biologics undertakes to inform Users by any means.

Contact us

If you have any questions about our Privacy Policy, please contact GenSight Biologics by e-mail at dpo@gensight-biologics.com.

Date of last update: September 18, 2026.

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Founded in 2012 to realize the potential of gene therapy, GenSight Biologics has grown into a clinical-stage company advancing multiple programs. In 2024, under a new management team, the company entered a new phase and is now accelerating its clinical and regulatory activities.

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GenSight Biologics S.A.
74 rue du Faubourg Saint-Antoine
75012 Paris
France